Mis diagnosed as Fibromyalgia, ME/CFS, Musculoskeletal Disease,Poly Myalgia Rheumatica - significantly improved when treated for Lyme Disease.
Perhaps more aptly described as Multi-Systemic Infectious Disease Syndrome - MSIDS.
Friday, 1 July 2016
FOX 5 LYME AND REASON
Thank you to FOX5 for excellent coverage of Lyme Disease - go to the links below for full coverage.
'Yale-trained Lyme disease expert Steven Phillips, MD, addresses the controversy surrounding Lyme disease, while Paul Mead, MD, Chief of Epidemiology and Surveillance Activity of The Bacterial Diseases Branch of the Centers for Disease Control and Prevention, offers the perspective from the country's lead public health agency.
-Singer and songwriter Dana Parish describes how Lyme disease temporarily derailed her music career during the prime of her life, and how she is now raising awareness about this debilitating illness!
-Lyme patient and advocate Susan Green of the non-profit The National Capital Lyme and Tick-Borne Disease Association (NatCapLyme) talks about the burden placed on families in terms of costs for the treatment of Lyme disease!
-Renowned oncologist Neil Spector, MD, shares his own personal story of his transition from doctor to patient, and how Lyme disease led to an emergency heart transplant!
-Actress and TV personality Marla Maples talks about her own diagnosis of Lyme disease, and how she is encouraging other celebrities to share their stories to put the spotlight on Lyme!
-Author, artist and designer Ally Hilfiger, the daughter of fashion icon Tommy Hilfiger, reflects on how Lyme disease stole her childhood, and her mind after being committed to a psychiatric hospital!
-Patricia De La Mora, Associate Professor of Clinical Pediatrics, Weill Cornell Medical College talks about prevention and how to keep your children safe, while Lawrence Putter, MD - Medical Director Lenox Hill Veterinarians discuss pet safety when it comes to ticks!
-12-year-old Julia Bruzzese shares her heartbreaking story of how Lyme disease has left her unable to walk, and how a blessing from Pope Francis on his visit to NYC last year has given her and her family hope for recovery!'
Our FOX 5 special, “Lyme and Reason: The Cause and Consequence of Lyme Disease,” truly struck a nerve with our viewers. Not was it viewed on TV by tens of thousands of viewers, it has gotten more than 20,000 views on our YouTube Channel, it also elicited over three thousand viewer responses via social media and email. What really caught our attention was the outrage in the Lyme Community over statements made by the CDC and the confusion from the general public as to why this disease is so controversial. Dr. Steven Phillips, a Yale-trained lyme disease expert interviewed in last week’s special, asked us if he could respond to statements made by the CDC, claiming among other things that “Reports of cases of Lyme being mistaken for other diseases are really quite rare” In an attempt to present both sides of this debate and have an open dialogue, I’m posting his comments here for our viewers to see. I have also reached out to the CDC for their response Wouldn’t it be great for all current and future sufferers of Lyme disease if we can at least have doctors who treat this illness and the government all working together to help find solutions and cure people living with this disease. Thank you to the tens of thousands of you who have watched our coverage and to the many hundreds who have offered your feedback. I look forward to continuing the discussion. Sincerely, Lew Leone
Please go to the link to read Dr Phillips responses and thank you to Fox5 for posting this.